International WAGR Syndrome Association

11p Deletion Syndrome

Home

About IWSA

Annual Report 2010

IWSA Past Present Future

Contact Us >

Discussion Group

IWSA & United Way

IWSA on YOU TUBE

ALL Stars

Donate Now>

How can you help ?

Newsletters/Mailing list

Online News

WAGR Weekend Events

WAGR Weekend Assistance

2011 Weekend Sponsors

2010 Weekend Sponsors

NEWLY DIAGNOSED ?

Coping with Dx & Dr's

FAQ's

FAQ's Espanol

"Our Story"

Checklist for parents

Information Packet

Guide for Physicians

Articles of interest

Education/School

LendingLibrary Guidelines

Nephrology Q & A

NEWS! Latest from NIH

NIH RESEARCH ENROLLMENT

NIH - Our Visit

NIH - My Experience

Pancreatitis in WAGR

Renal Disease in WAGR

RESEARCH at NIH

Seizures/Epilespy

Sensory Issues

Short Stature in WAGR

Wilms Tumor Study Group

Resource Links

Int'l Rare Disease Links

WAGR Angels

New! Site Map

Education Questions?

IWSA Education Consultant - Rhonda Sena, M.Ed. -
casasena5@yahoo.com

Rhonda is a co-founding member and former officer of our organization. She attended the University of New Mexico, receiving her Bachelor of Science in Elementary Education in 1993 and her Master of Arts in Elementary Education in 1994. She currently holds a K-8 teaching licensure, level 2 in New Mexico where she resides with her husband Alfred and their three children. 
Her son, Alex, has WAGR Syndrome.

IWSA Lending Library


The IWSA has purchased a few books to start a lending library. 
Descriptions can also be found on Amazon.
Please take advantages of these new resources.


If you want to
donate books or borrow a book,
please contact Rhonda Sena, at
CasaSena5@yahoo.com

IWSA Lending Library Guidelines



Book Titles Available


Children with Visual Impairments:  A Parent's Guide
by M. Cay Holbrook

Loaded with instructive guidance and concrete support, this fine resource offers a great deal of information and reassurance to parents who have children with visual impairments. With authority and clarity, special educator Holbrook and her contributors (educators, medical specialists, and other experts) provide straightforward, demystifying facts on pertinent medical, emotional, social, educational, and family issues. Each chapter's discussion is followed by helpful, concrete guidance for parents to aid them in fostering their child's independence, self-esteem, mobility, and literacy. Specific data on the assessment and causes of visual impairments, appropriate educational intervention and settings, and disability law arm parents with critical knowledge to deal with outside professionals, siblings, daily routines, and so forth. Holbrook, who also has a child with a visual impairment, concludes each chapter with pithy quotes from actual parents. Although geared to parents of young children, this book will also be valuable to those with older children or children with multiple disabilities.  

A Parent's Guide to Special Education for Children with Visual Impairments
by Susan LaVenture

This handbook for parents, family members, and caregivers of children with visual impairments explains special education services that these children are likely to need and to which they are entitled--and how to make sure that they receive them. Edited by Susan LaVenture, the Executive Director of the National Association for Parents of Children with Visual Impairments and written by experienced professionals and parents, this helpful resource addresses the effect of visual impairment on a child's ability to learn and the services and educational programming that are essential for optimal learning. It is an invaluable manual, intended to help parents ensure that their children receive the best education possible. 

The Out of Sync Child
by Carol Kranowitz

The Out-of-Sync Child broke new ground by identifying Sensory Processing Disorder, a common but frequently misdiagnosed problem in which the central nervous system misinterprets messages from the senses. This newly revised edition features additional information from recent research on vision and hearing deficits, motor skill problems, nutrition and picky eaters, ADHA, autism, and other related disorders.  

The Out of Sync Child Has Fun
by Carol Kranowitz

This revised edition of the companion volume to The Out-of-Sync Child includes new activities that parents of kids with Sensory Processing Disorder can do at home with their child, along with updated information on which activities are most appropriate for children with coexisting conditions such as Asperger's, autism, and more.  Growing an In Sync Child

A fresh and timely approach to understanding the profound impact of motor development on children of all ages and stages.

Based on the authors' more than seventy combined years of professional success working with children of all abilities, Growing an In-Sync Child provides parents, teachers, and other professionals with the tools to give every child a head start and a leg up.

Because early motor development is one of the most important factors in a child's physical, emotional, academic, and overall success, the In- Sync Program of sixty adaptable, easy, and fun activities will enhance your child's development, in just minutes a day.

Discover how simple movements such as skipping, rolling, balancing, and jumping can make a world of difference for your child-differences that will last a lifetime.

Special Education Law


Wrightslaw: Special Education Law, 2nd Edition provides a clear roadmap to the laws and how to get better services for all children with disabilities. This Wrightslaw publication is an invaluable resource for parents, advocates, educators, and attorneys. You will refer to this book again and again.

From Emotions to Advocacy

Wrightslaw: From Emotions to Advocacy, second edition will teach you how to plan, prepare, organize and get quality special education services. In this comprehensive, easy-to-read book, you will learn your childs disability and educational needs, how to create a simple method for organizing your childs file and devising a master plan for your childs special education. You will understand parent-school conflict, how to create paper trails and effective letter writing. This book includes dozens of worksheets, forms and sample letters that you can tailor to your needs. Whether you are new to special education or an experienced advocate this book will provide a clear roadmap to effective advocacy for your child. You will use this book again and again.


Winning Attitudes, Great Rewards

Web Hosting powered by Network Solutions®