International WAGR Syndrome Association

Formerly ReachingOut, The WAGR Network

International Rare Disease Organizations

Listing these organizations does not constitute endorsement by
International WAGR Syndrome Association.

Some of these organizations offer helpful resource links.
 
Belgium

Rare Disorders Belgium (RDB)
www.rd-b.be 


 

Canada
Canadian Organization for Rare Disorders
www.raredisorders.ca 
 
Denmark
Rare Disorders Denmark
www.raredisorders.dk   
 
Europe
European Organization for Rare Diseases (EURORDIS)
www.eurordis.org  
 
France
Alliance Maladies Rares
www.alliance-maladies-rares.org   
 
Germany
Allianz Chronischer seltener Erkrankungen e.V. (ACHSE)
www.achse-online.de   
 
Greece
Greek Alliance for Rare Disease (PESPA)
www.pespa.gr  
 
Italy
Federazione Italiana Malattie Rare (UNIAMO)
www.uniamo.org  
 
Netherlands
Vereniging Samenwerkende Ouder- en Patintenorganisaties (VSOP)
www.vsop.nl  
 
New Zealand
New Zealand Organisation for Rare Disorders
www.nzord.org.nz  
 
Spain
Federacin Espaola de Enfermedades Raras (FEDER)
www.enfermedades-raras.org   
 
Sweden
The Swedish Association of Rare Disorders (Riksfrbundet Sllsynta diagnoser)
www.sallsyntadiagnoser.nu   
 
Taiwan
Taiwan Foundation for Rare Disorders
www.tfrd.org.tw   
 
United States
National Organization for Rare Disorders
www.rarediseases.org