International WAGR/11p Deletion Syndrome Research Study
§ Children and adults with WAGR/11p Deletion Syndrome and their parents are invited to participate in a clinical study sponsored by the Eunice Kennedy Shriver National Institute of Child Health and Human Development, which is part of the National Institutes of Health (NIH).
§ The purpose of the study is to learn more about how the genes involved in WAGR/11p Deletion Syndrome affect people with this condition and to identify potential treatments to improve their health.
§ Participation involves providing blood samples and medical records to NIH investigators, and if certain criteria are met, the option of also having an inpatient evaluation and enrollment in a medical treatment trial at the NIH Clinical Research Center in Bethesda, Maryland.
§ There is no cost for participating in the study. Eligible participants will be compensated for their time and transportation costs.
§ For more information, please contact:
Joan Han, MD
WAGR Syndrome Study WAGR Syndrome
(301) 435-7820
hanjo@mail.nih.gov
Amanda Huey, BA
WAGR Syndrome Study Coordinator
(301) 402-6762
WAGR_Study@mail.nih.gov
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