International WAGR Syndrome Association

Formerly ReachingOut, The WAGR Network
 
International

WAGR Syndrome Research Study


  • Children and adults with WAGR Syndrome and their parents are invited to participate in a clinical study sponsored by the National Institute of Child Health and Human Development,  which is part of the National Institutes of Health (NIH)

 

  • The purpose of the study is to learn more about how the genes involved in WAGR Syndrome affect people with this condition

 

  • Involves sending blood samples and medical records to NIH investigators

 

  • For more information, please contact:


Joan Han, MD                                          Rebecca Levinn, BA
Research Investigator                             Study Coordinator              
(301) 435-7820                                       (301) 402-6762
hanjo@mail.nih.gov                                levinnre@mail.nih.gov

Department of Health and Human Services

National Institutes of Health

National Institute of Child Health and Human Development

 

 
 
                              Investigación del síndrome WAGR


* Invitamos a los niños y adultos con el síndrome WAGR y sus padres a participar en un estudio clinical patrocinado por el Instituto Nacional de Salud Infantil y Desarrollo Humano, uno de los Institutos Nacionales de la Salud (NIH)
 
* El objetivo del estudio es aprender más sobre cómo afectan los genes implicados en el síndrome WAGR a la gente con esta enfermedad

 * Hay que enviar espécimenes de sangre y documentos médicos a los investigadores de NIH 

 * Para aprender más, favor de contactar a:

Joan Han, MD                                       Rebecca Levinn, BA
(Investigadora)                                    (Coordinadora del estudio)
(301) 435-7820                                    (301) 402-6762
hanjo@mail.nih.gov                                    levinnre@mail.nih.gov                                                  

Departamento de Salud y Servicios Humanos
Institutos Nacionales de la Salud
Instituto Nacional de Salud Infantil y Desarrollo Humano