International
WAGR Syndrome Research Study
§ Children and adults with WAGR Syndrome and their parents are invited to participate in a clinical study sponsored by the Eunice Kennedy Shriver National Institute of Child Health and Human Development, which is part of the National Institutes of Health (NIH)
§ The purpose of the study is to learn more about how the genes involved in WAGR Syndrome affect people with this condition
§ Participation involves providing blood samples and medical records to NIH investigators, and if certain criteria are met, the option of also having an inpatient evaluation at the NIH Clinical Research Center in Bethesda, Maryland
§ There is no cost for participating in the study. Eligible participants will be compensated for their time and transportation costs.
§ For more information, please contact:
Joan Han, MD Kristen M. Danley, BS
WAGR Syndrome Study Principal Investigator WAGR Syndrome StudyCoordinator
(301) 435-7820 (301) 402-6762
hanjo@mail.nih.gov danleykr@mail.nih.gov
Department of Health and Human Services
National Institutes of Health
Eunice Kennedy Shriver National Institute of Child Health and Human Development
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