Listing these organizations does not constitute endorsement by International WAGR Syndrome Association.Some of these organizations offer helpful resource links.
CanadaCanadian Organization for Rare Disorders www.raredisorders.ca Denmark Rare Disorders Denmark www.raredisorders.dk Europe European Organization for Rare Diseases (EURORDIS) www.eurordis.org France Alliance Maladies Rares www.alliance-maladies-rares.org Germany Allianz Chronischer seltener Erkrankungen e.V. (ACHSE) www.achse-online.de Greece Greek Alliance for Rare Disease (PESPA) www.pespa.gr Italy Federazione Italiana Malattie Rare (UNIAMO) www.uniamo.org Netherlands Vereniging Samenwerkende Ouder- en Patintenorganisaties (VSOP) www.vsop.nl New Zealand New Zealand Organisation for Rare Disorders www.nzord.org.nz Spain Federacin Espaola de Enfermedades Raras (FEDER) www.enfermedades-raras.org Sweden The Swedish Association of Rare Disorders (Riksfrbundet Sllsynta diagnoser) www.sallsyntadiagnoser.nu Taiwan Taiwan Foundation for Rare Disorders www.tfrd.org.tw United States National Organization for Rare Disorders www.rarediseases.org
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