International WAGR Syndrome Association

11p Deletion Syndrome
What is WAGR Weekend?

Our WAGR Weekends are just fun, informal gath­erings where we finally meet each other in person. It’s wonderful to spend time with other families who know just what your life is like. And meet­ing each other’s children is the greatest! Our kids with WAGR get to meet other kids who are “just like me,” and their siblings get to see that they’re not alone either. For many families, it’s a rare op­portunity to just relax.
 
Hosts
Shari Krantz & Amy Marshall

WAGR WEEKEND
JULY 10-12, 2009
GAITHERSBURG, MARYLAND

SpringHill Suites by Marriott
9715 Washingtonian Blvd
Gaithersburg, MD 20878
(301) 987-0900  or  1 (888) 287-9400

On line reservations:

http://www.marriott.com/hotels/travel/WASGT?groupCode=IWAIWAA&app=resvlink&fromDate=7/10/09&toDate=7/12/09

Event name: WAGR Weekend
Group rate $94.00 per night 
*limited rooms available on a first come first serve basis 
before June 19, 2009


 Meetings will be held in Bohrer Park Activity Center
(air conditioned facility)
508 S Frederick Ave
Gaithersburg, MD 20877
(301) 258-6420

Park Activities
Playground, Water park, Miniature Golf, Skate Park
http://www.gaithersburgmd.gov/poi/default.asp?POI_ID=28&TOC=1;28;
 

Tentative Itinerary:

Friday Night 6:30 - 9:00pm 

Meet & Greet
Mom's night out
 
Saturday

9:30 - 11:30 am

Welcome from IWSA

NIH/NICHD Research Update from
Joan Han, MD & Kristen Danley, BS

Question & Answer Session

9:30 - 12:30 pm
**Children's activities in the gym**

12:30 pm

Lunch - Catered

1:30 - 6:30 pm

*Free time -  Playground, Water park, Miniature Golf, Skate Park

6:30 pm

Dinner - Catered pizza party
Dad's night out


Sunday

9:30 am

Morning tour of the NIH
Children's Inn & Clinical Center



In prepraration for our WAGR Weekend event
we request each family submit
a RSVP form.

We are renting space & ordering catered food
so accurate numbers are important to us.
RSVP
WAGR Weekend July 10 - 12, 2009
Security code - please type in - RSVP
First Name
Last Name
Address Line 1
Address Line 2
City
State
Zip Code
Country
Daytime Phone() -
E-mail Address
___________________
Friday Night Meet & Greet yes/no
# of adults for Friday - Meet & Greet
# of children for Friday - Meet & Greet
_________________
Saturday Lunch yes/no
# of adults Saturday Lunch
# of chldren Saturday Lunch
_______________
Saturday Night Pizza Party yes/no
# of adults Saturday Night Pizza
# of children Saturday Night Pizza
______________
Sunday - Tour the NIH yes/no
# of adults Sunday tour
# of children Sunday tour
_____________
Names of Adults
Name/s & age/s of children
Would you like to discuss assistance to attend WAGR Weekend? yes/ no / unsure

Have questions?

Please feel free to ask: Reachingout@wagr.og


 
WAGR Weekend 2008

Taylor, Michigan


Our Hosts - The Prusakiewicz Family
Gorilla Giving Donation to IWSA in honor of Hayden Dell
WAGR WEEKEND 2008 Taylor, MI
THE FAMILIES 2008
THE KIDS
The Brooks & Bullock Family
The Dell & Wright Family
The Cox & Robinson Family
The Farren & Westcott Family
The Franceschini & Barrett Family
The Meyer Family
The Luis Family - HH sitting in for John
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IWSA 2007 WAGR Weekend
WAGR WEEKEND 2006 PA
WAGR WEEKEND 2001 VA
FIRST WAGR WEEKEND 2000 VA


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