Synonyms of WAGR Syndrome
11p deletion syndrome
Chromosome 11p deletion syndrome
WAGR Complex
Wilms' Tumor-Aniridia-Genitourinary Anomalies-
Mental Retardation Syndrome
Wilms' Tumor-Aniridia-Gonadoblastoma-
Mental Retardation Syndrome
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Disorder Subdivisions
AGR Triad
(Aniridia-Genitourinary Anomalies-Mental Retardation)
AWTA
(Aniridia-Wilms' Tumor-Association)
Aniridia-Wilms' Tumor-Gonadoblastoma
Aniridia-Ambiguous Genitalia-Mental Retardation
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WAGR Syndrome is a very rare disorder. Physicians are generally not familiar with this condition, or with the features and complications of it. People with WAGR syndrome benefit greatly when family caregivers, medical professionals, teachers and therapists learn as much as possible about the disorder, and become active partners in their care. “WAGR” is an acronym. The letters stand for the most common features of this disorder.
In rare cases, it is possible to have WAGR syndrome without aniridia.
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International Research Study - open enrollment
WAGR SYNDROME & 11p DELETION
CLINICAL STUDY
Open to children and adults with WAGR syndrome
Sponsored by the
Eunice Kennedy Shriver National Institute of Child Health and Human Development,
which is part of the
National Institutes of Health (NIH)
Bethesda, MD., USA
NICHD/NIH study information >
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