Welcome to the online home of the International WAGR Syndrome Association!
“The mission of the IWSA is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives”
Rare Disease Day 2014 is February 28th! Help celebrate and raise awareness of rare disease by performing Rare Acts of Kindness on February 28th and handing out cards explaining why you did the Rare Act. Print out the Rare Act PDF and be as kind as you like!
Shovel or sweep someone's sidewalk or driveway
Pay for someone's order at a restaurant
Buy someone a cup of coffee
Hold the door open for someone
Give your mail carrier or paper deliverer a thank you card
WAGR Syndrome is a very rare disorder. There are less than a few hundred cases reported in the medical literature.
“WAGR” is an acronym for the most common features of this disorder. Wilms' Tumor,Aniridia, Genito-Urinary Anomalies, R- developmental delay/s People with WAGR Syndrome have many things in common, but they are also individuals. It is important to remember that a given individual with WAGR syndrome may or may not have or develop all of the conditions listed.
Medical Disclaimer: The information contained on this web site is presented for your information. Nothing contained on this web site should be construed nor is intended to be used for medical diagnosis. Consult a physician in the event of a medical problem.
Rare Disease Europe link
Genetic Alliance link
National Organization for Rare Disorders
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