Rare Disease Day on February 28, 2010
U.S. website for Rare Disease Day
at
http://www.rarediseaseday.us
and to visit the global Rare Disease Day site
at
http://www.rarediseaseday.org
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“The mission of the IWSA is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives”
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| THE IWSA CARING QUILT |
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WAGR Syndrome is a very rare disorder.
There are less than a few hundred cases reported in the medical literature.
“WAGR” is an acronym for the most common features of this disorder.
Wilms' Tumor, Aniridia, Genito-Urinary Anomalies, Mental Retardation
People with WAGR Syndrome have many things in common, but they are also individuals. It is important to remember that a given individual with WAGR syndrome may or may not have or develop all of the conditions listed.
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Synonyms of WAGR Syndrome:
11p deletion syndrome,
Chromosome 11p deletion syndrome
WAGR Complex
Wilms' Tumor-Aniridia-Genitourinary Anomalies-Mental Retardation syndrome
Wilms' Tumor-Aniridia-Gonadoblatoma-Mental Retardation syndrome
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International Research Study - open enrollment
WAGR SYNDROME & 11p DELETION
CLINICAL STUDY
Open to children and adults with WAGR syndrome
Sponsored by the
Eunice Kennedy Shriver National Institute of Child Health and Human Development,
which is part of the
National Institutes of Health (NIH)
Bethesda, MD., USA
NICHD/NIH study information >
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Would you like to make a tax deductible donation to IWSA?
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Medical Disclaimer:
The information contained on this web site is presented for your information.
Nothing contained on this web site should be construed nor is intended to be used for medical diagnosis.
Consult a physician in the event of a medical problem.
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All rights reserved.
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Contact: IWSA@WAGR.ORG for more information.
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