IWSA President, Tammie Hefty's radio interview
on
"What I can do for Rare Disease Day"
|
“The mission of the IWSA is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives”
|
WAGR Syndrome is a very rare disorder.
There are less than a few hundred cases reported in the medical literature.
“WAGR” is an acronym for the most common features of this disorder.
Wilms' Tumor, Aniridia, Genito-Urinary Anomalies,
R- developmental delay/s
People with WAGR Syndrome have many things in common, but they are also individuals. It is important to remember that a given individual with WAGR syndrome may or may not have or develop all of the conditions listed.
|
IWSA Announces Name Modification--WAGR/11p Deletion Syndrome
|
Medical Disclaimer:
The information contained on this web site is presented for your information.
Nothing contained on this web site should be construed nor is intended to be used for medical diagnosis.
Consult a physician in the event of a medical problem.
|
 |
| ResearchMatch https://www.researchmatch.org |
|
|
 |
| Rare Disease Europe link |
|
|
 |
| Genetic Alliance link |
|
|
 |
| National Organization for Rare Disorders |
|
| |
|
This counter represents the number of visitors to our website it does not collect personal information.
|
Copyright © 2000-2012
COPYRIGHT IWSA/International WAGR Syndrome Association
WAGR.org, 11pdeletion.org and 11pdeletionsyndrome.org
All rights reserved.
Terms of Use - You may print copies of the articles and/or the files on this site, for your own personal use or to share with others, unless otherwise noted. For non-commercial use only. Copying photos and/or logo is prohibited.
Materials on this website may not be reproduced, displayed, or published in other websites, blogs, newsletters, or other media without the prior written permission of IWSA/International WAGR Syndrome Association.
Contact: IWSA@WAGR.ORG for more information.
|
Our Website does not host any form of advertisement.
Last updated 7/28/12
|
|
