“The mission of the IWSA is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives”
IWSA Announces Name Modification--WAGR/11p Deletion Syndrome
Tremendous progress has been made during the past several years in many areas of medicine and medical research. One of the most exciting and productive areas is the field of genetics. Identifying and pinpointing specific genetic abnormalities and deletions is already helping to understand the causes of diseases and syndromes, including WAGR Syndrome. The short arm of the 11th Chromosome (11p) is the affected area for WAGR Syndrome.
WAGR Syndrome is a very rare disorder. There are less than a few hundred cases reported in the medical literature.
“WAGR” is an acronym for the most common features of this disorder. Wilms' Tumor,Aniridia, Genito-Urinary Anomalies, R- developmental delay/s People with WAGR Syndrome have many things in common, but they are also individuals. It is important to remember that a given individual with WAGR syndrome may or may not have or develop all of the conditions listed.
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