Join families around the world to raise awareness of WAGR and raise funds for the organization that supports the individuals and families affected by this rare disorder.

WAGR Awareness Day is the IWSA’s largest fundraiser of the year and your help is needed!

This year our group fundraiser “MOVE FOR WAGR” is a great opportunity to share your story with your community. Your participation will help shine a light on WAGR syndrome and support children and families worldwide.

Team Dylan-Dylan and his family are from Belgium and his mom, Linda, has named their fundraiser "100 hearts for Dylan". For every donation, she will color a heart. Linda says "every heart, every contribution, and every euro raised brings us one step closer to a better future for all individuals with WAGR." The IWSA has a European bank account and donations can be made directly to that account.

Team Grace- The Colhoun Family from the United Kingdom continues to raise awareness and funds for WAGR and the IWSA. This month AJ and his football team are taking on a challenge! They're aiming to complete 11,000 kick-ups in 11 days (3rd-13th of November). The WAGR genetic deletion is on Chromosone 11 so that's why they've chosen 11,000. The players, parents, and managers are all on board and ready to raise funds for the IWSA.

Team Emilia-The Davies Family of the UK is Walking for WAGR. Ten year old Emilia has faced many challenges in her short life and has agreed to walk 100km in November to raise funds for the IWSA "to help them continue their work supporting familis, advancing research, and improving lives." 

Team Miranda-The Morris Family of Pennsylvania, USA, are teaming up with their family foundation called Miranda's Mission to support the IWSA during this year's WAGR Awareness Campaign. From Nov 1 through Nov 13, they're asking families and friends to join "Miles for Miranda" walking challenge to raise funds for the IWSA. When they reach 1,113 miles (significant to the WAGR genetic deletion region), Miranda's Mission will donate $1,113 to the IWSA. Participants simply report their steps and miles, showing support that shines a light on WAAGR and support for Miranda.

• A disorder is considered "rare" if it affects fewer than 200,000 people in the US (or 1 in 2,000 people in Europe). WAGR syndrome affects fewer than 500 people worldwide and is considered an "ultra-rare" disorder
• Rare disorders like WAGR syndrome are important because they are key to unlocking the mysteries of more common conditions. For example: People with WAGR syndrome often have obesity caused by a mutation in the BDNF gene. Studying this gene could help lead to new treatments for obesity

Better medical care. Powerful research. Family support that makes a real and lasting difference in the lives of kids and adults with WAGR syndrome.

When you support the IWSA, you make ALL of these happen!